Jewish health advocates cheer Bush
by SHARON SAMBER, Jewish Telegraphic Agency
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WASHINGTON -- Like President Clinton before him, President Bush has given his backing to legislation barring health insurance companies from discrimination on the basis of an individual's genetic background.
But this time around, Jewish health care advocates think a bill, currently pending in Congress, has a better chance of becoming law because it has the backing of top congressional leaders.
The legislation also may get a boost from the field of genetic science. With the map of the human genome completed, the need to protect genetic information from abuse has become more accepted.
Hadassah: The Women's Zionist Organization of America, has placed the effort to ban genetic discrimination as its top domestic policy priority since medical studies have found that some genetic mutations predisposing individuals to certain forms of cancer, particularly breast and ovarian cancers, have particularly high frequencies among Ashkenazi Jews.
Recent studies have confirmed that certain mutations on the BRCA 1 and BRCA 2 cancer genes occur with higher-than-expected frequency in Ashkenazi Jewish women than in other population groups.
Scientists estimate that about 1 in 50 Jewish women carry one of these BRCA mutations.
In his radio address this weekend, Bush noted that current laws have not kept pace with the issues raised by the scientific and technological progress of genetics, and said the White House is working to shape legislation that will make such discrimination illegal.
"Genetic discrimination is unfair to workers and their families," Bush said. "We will all gain much from the continuing advances in genetic science, but those advances should never come at the cost of basic fairness and equality under law."
Legislation to prohibit health plans and insurers from discriminating with respect to genetic information -- known as the "Genetic Nondiscrimination in Health Insurance and Employment Act" -- has broad bipartisan support in the U.S. House of Representatives.
In the Senate, only Democrats have signed on as co-sponsors of the bill, but Senate Majority Leader Tom Daschle (D-S.D.) supports the measure and another supporter, Sen. Edward Kennedy (D-Mass.), chairs the committee that will examine the issue.
For more JTA stories, go to http://www.jta.org
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